Resources

Selecting, Preparing, and Supporting Patient and Family Advisors
This resource, developed by the Institute for Family-Centered Care, provides a summary of guidelines to follow when asking a patient or family member to serve as an advisor in health care. Practical ideas for selecting, preparing, and supporting patient and family advisors are included.

Words of Advice: A Guidebook for Families Serving as Advisors
Thomas J, Jeppson ES. Bethesda, MD
Institute for Family-Centered Care; 1997

This workbook is designed to help patients and family members think through the benefits and demands of advisory roles. It presents fundamental principles for being a successful advisor and practical tips for dealing with common challenges in that role. It includes self-assessment activities to help address strengths, skills, and areas that need enhancement before patients or family members make a commitment to an advisory position. The workbook also features "words of advice" from expert families serving in advisory roles. Available from the Institute for Family Centered Care.