Resources

“Learning to Live with Asthma”
Produced by Asthma and Allergy Foundation of America

A short, clear video (under 2 min.) for those with asthma that gives a good overview of asthma management. It includes major strategies, emphasizes the importance of collaborative action planning, and touches on environment & exercise. It conveys several aspects of a close working relationship between patient and provider and its benefits in this context. Covers a lot well and quickly. This resource might provide a potential starting place for initial patient/provider discussions. Click here to view this video.

Words of Advice: A Guidebook for Families Serving as Advisors
Thomas J, Jeppson ES. Bethesda, MD
Institute for Family-Centered Care; 1997

This workbook is designed to help patients and family members think through the benefits and demands of advisory roles. It presents fundamental principles for being a successful advisor and practical tips for dealing with common challenges in that role. It includes self-assessment activities to help address strengths, skills, and areas that need enhancement before patients or family members make a commitment to an advisory position. The workbook also features "words of advice" from expert families serving in advisory roles. Available from the Institute for Family Centered Care.

Selecting, Preparing, and Supporting Patient and Family Advisors
This resource, developed by the Institute for Family-Centered Care, provides a summary of guidelines to follow when asking a patient or family member to serve as an advisor in health care. Practical ideas for selecting, preparing, and supporting patient and family advisors are included.